So. Some of you who are following me on other social media might know, I've been sick and had been in hospital from last Friday till Monday.
It was sooo sudden and none of our family members knew about my disease. And it changed my whole world. I need to have treatments from now. And since I have possibility to have seizures, I can't drive a car for a half year.
I don't remember anything, but I had two seizures during Thursday night. When I woke up in Friday morning, I had a bad headache. I went to ER with my husband and soon was to be hospitalized. I even spent one night in ICU, had MRI and CT. And was diagnosed as AVM.
I and my husband had never heard of that diagnosis and didn't know anything about that disease. It is malformation of the blood vessel in the brain and has a danger to bleed so it needs to be treated.
Now I've been having medicine to prevent seizures and it makes me sleepy and dizzy. I'm getting a little bit better and better. Other than unable to drive a car, I'm trying to make my life back to normal. And it includes sewing. I haven't sewn after that till now and am really missing it. But it is really hard for me to stay up late now, it won't be same as before.
It will be much slower than before but I sure will sew and blog about it because it is very important part of my life now. And I JUST LOVE IT.
I will go to hospital next Tuesday and have more concrete treatment plan. So, I want some guys who will work with me this spring wait for a while. Sorry for inconvenience.
I was really lucky that they were only seizures not bleeding and could have lived totally healthy until now (it was three days after my 38th birthday). I still have very mixed feeling about my disease and it is hard to explain. But it is important for me to memorize things.
I already got some warm comment on other social media and really appreciate them. Thank you and please be patient about my slow sewing and blogging.
Oh shino! That is so scary. I cannot believe it. I'm sure things will take adjusting to and sewing may turn out to be a greater blessing in your life than even before. It's a relatively calm activity and one which you can do at your own pace so it should be a great outlet. Thank you for letting us know about your diagnosis!
Posted by: Ajaire | 03/01/2014 at 05:51 PM
I'm so sorry Shino. That's terrible news, but from the sound of it, at least it's something that can be managed. And I'm sure that once you've recovered from the shock of the diagnosis and have your symptoms and side-effects under control, sewing will be very therapeutic. Don't worry about not blogging for a while, we will all understand and will still be here whenever you're ready to sew and blog again. Best wishes to you and your family.
Posted by: marisa | 03/01/2014 at 09:34 PM
Shino, I am glad it was not a bleed! Take care and look after yourself. I hope once you have a concrete treatment plan you will feel better and more rested. Take care :) We will be here when you are ready to sew again :)
Posted by: Jenya | 03/02/2014 at 03:28 AM
Look after yourself Shino, sending best wishes from Australia. As Jenya said, we will be here to enjoy your blog when you are feeling better :)
Posted by: Renee //nearestthepin | 03/02/2014 at 03:35 AM
Oh Shino, so sorry for you! Sending you some good thoughts from Germany! Wishing you all the best!
Posted by: Annika | 03/02/2014 at 05:48 AM
I'm Sorry to hear this! I hope you can get back to your normal routines and don't get any more seizures. I'm sending all the positive energy to you and your family, and of course I will be waiting here for your lovely blog, no matter how long it takes you to get back. XOXO from California!!!
Posted by: Patty Jakob | 03/02/2014 at 08:20 AM
I'm sorry to hear about your diagnosis. It's always difficult to deal with new medical conditions and takes a bit of time to adjust. My son has some medical problems, and I know our whole family is learning to live with them. I wish you the best and look forward to reading whatever you post on your blog whenever you post it :)
Posted by: Teri | 03/02/2014 at 10:43 AM
Shino, II am so sorry to hear that you are sick!. How awful! I hope the treatment plan works and you get better and better. Take care of yourself, friend! :(
Posted by: Olga Becker | 03/02/2014 at 12:21 PM
Hi Shino! I am so sorry to hear about what is happening to you! I hope you get better very soon!
Posted by: Marta | 03/02/2014 at 04:42 PM
I am so sorry for this sad news... Wishing you all the best! And I will keep coming here and following you on Instagram. You will get back to sewing, you'll see. It will be therapeutic. And we will all be here to cheer you up! Take care.
Posted by: Sara | 03/02/2014 at 06:10 PM
It's very brave of you to speak about what's happened, and what might happen next. Best of luck to you, wishing you well.
Posted by: Lightning McStitch | 03/03/2014 at 01:34 AM
I am so sorry to read this. Wishing you the best and looking forward to your future posts when you are up to it.
Posted by: Christine | 03/03/2014 at 07:59 AM
So sorry to hear about your diagnosis as well. Hopefully your body will get more used to the medication very soon.
Sending best wishes..
Posted by: sewbecause | 03/03/2014 at 08:41 AM
Oh Shino! Life can be so unexpected and it takes time to adjust. Take things slowly! We'll be here whenever you are! Victoria
Posted by: Victoria As-it-Seams | 03/03/2014 at 09:23 AM
Hope you will feel well again soon and adjust as smooth as possible to life with this health condition... Wishing you well!
Posted by: Nienke | 03/20/2014 at 03:04 PM